We are closely monitoring the outbreak of the coronavirus (COVID-19) and wanted to update you on the efforts of The ALS Association Kentucky Chapter to protect the health and well-being of our clients, caregivers, families, volunteers, and employees.
We are acutely aware that people with ALS are at an increased risk for respiratory problems associated with viral infections.
Because of this risk and the care needs of many people with ALS, we are considering their primary caregivers as high risk as well. It is important for us to be increasingly cautious as a result. Out of this caution, we have decided to pause our monthly, in-person support groups across the state for now.
The ALS Association Kentucky Chapter promotes everyday preventive health actions to all our clients, caregivers, families, volunteers and staff, in accordance with the Centers for Disease Control (CDC) and the state Department of Public Health (DPH) guidelines.
Wash your hands often with soap and water for 20 seconds. If soap and water are not available, use an alcohol-based hand sanitizer.
Avoid touching your eyes, nose, and mouth with unwashed hands.
Avoid close contact with people who are ill.
Stay home when you are ill.
Practice good respiratory etiquette and cover your mouth and nose when coughing or sneezing.
If using a tissue, immediately throw the tissue in the garbage and wash your hands.
If you don’t have a tissue, sneeze or cough into your sleeve or arm.
Please see the information below for those of you with children in your family at home:
Winning With ALS has grants available. Our mission is to provide support for families with children still in the home who are living with a parent diagnosed with Amyotrophic Lateral Sclerosis (ALS).
Grants could come in the form of support for vacation expenses, little league dues, camp costs, school tuition, or any other financial need that would assist the family in providing a degree of normalcy for their children. Please visit our website here for a link to an application.
You can be assured that the work of our chapter will go on. That’s because our community is made up of people like you, who are committed to the ALS Association’s mission no matter what. In good times and bad, we know you’re with us.
ALS is relentless; it doesn’t stop for COVID-19. The impact of ALS continues to be felt by those in our community every day. We won’t let COVID-19 prevent us from assisting families or stop our fight against this disease.
To learn more visit our Facebook pages to see the full video or click here: Video
More information to come in regards to the Lexington and Western KY Walks!
Registration is open for teams:
A great newly published book - Carrey Dewey, from Louisville, KY lost her battle with ALS.
Her blog posts and social media posts are inspiring and humbling.
Available at www.butlerbooks.com
Proceeds go to ALS patients and research. Please share with others.
If you have any questions about participating in any Walk, holding a fundraiser, or volunteering opportunities please contact:
Madison Weiter at 502-495-3672 or firstname.lastname@example.org
Or register here
Kentucky Chapter Care Services
Northern Kentucky Area
2nd Tuesday of the Month-6pm-7:30pm
St. Elizabeth Hospital-Florence
Main Entrance Atrium Conference Room
4900 Houston Road
Western KY Area
2nd Thursday of the Month-6pm-7:30pm
Murray Calloway County Hospital
Hospital Board Room
803 Poplar Street
3rd Tuesday of the Month-6pm-7:30pm
Cardinal Hill Rehab Hospital
Center of Learning Wing
2050 Versailles Road
4th Tuesday of the Month-6pm-7:30pm
At KY Chapter Office
13102 Eastpoint Park Boulevard Suite #101
Please keep in mind that dates, times, and locations can change. For more information please contact:
Patricia Peak - 502-495-3672
Bereavement Support & Programs
The Kentucky Chapter offers support for those who have lost a loved one to ALS. If you are a former Caregiver, Family Member, Friend, etc., and are seeking support in dealing with your loss, we encourage you to attend our group meetings.
Unless told otherwise, our Louisville Support Group Meetings will be held from now on at our Louisville Office: 13102 Eastpoint Park Boulevard Suite #101 Louisville KY 40223
Kentucky ALS Clinics and Treatment Centers
University of Kentucky ALS Certified Multidisciplinary Clinic
Dr. Edward Kasarskis, Medical Director-Kentucky Neuroscience Institute-1st floor of Kentucky Clinic
740 South Limestone Street, J-401 Lexington, Kentucky 40536-0284
Patient Services Coordinator-Brittany Ledford (859)218-5061
Clinical Research Nurse- Meghann Bruno, RN (859)218-5064
Fax:(859)257-5477 or Fax:(859)257-8990/E-mail: Meghann.email@example.com
University of Louisville Physicians Recognized ALS Multidisciplinary Clinic @ Frazier Rehab
Meets on Friday twice a month
Dr. Martin Brown, Medical Director-Frazier Rehab Hospital-6th Floor
220 Abraham Flexner Way Louisville KY, 40202
Johanna Harris, RN, BSN, ALS Clinic Coordinator
Phone:(502)588-4829 or Fax:(502)589-0805/Email: firstname.lastname@example.org
Norton Neuroscience Institute ALS Clinic
Meets the 3rd Wednesday of the month
Dr. Mark Bazant, Medical Director-Norton Cancer Institute
676 South Floyd Street 2nd Floor Louisville, Kentucky 40202
Phone:(502)899-6782 or Fax:(502)899-6783
Lexington VA-Multidisciplinary ALS Clinic
Dr. Edward Kasarskis, Medical Director-Cooper Division
1101 Veterans Drive Lexington, KY 40502
Donna Hardiman, Case Manager
Louisville VA-Multidisciplinary ALS Clinic
Dr. David Haustein, Medical Director, Vickie Dearmond, Nurse Practitioner/Robley Rex VA Medical Center
800 Zorn Ave Louisville, KY 40206
Carol Scott, LCSW
Dr Bazant at the Norton ALS Clinic
The ALS Certified Treatment Center at University of Kentucky
The ALS Recognized Treatment Center at University of Louisville
Current ALS Research Studies at the University of Kentucky
Clinical Drug Studies:
*Please feel free to call at any time regarding ALS Clinical Trials or Contacts*
Our partnership with Heaven Hill Distilleries is vital to our mission and fight against ALS. Each year Heaven Hill donates a part of the proceeds from the annual Parker’s Heritage Collection whiskey to fight Amyotrophic Lateral Sclerosis, better known as “Lou Gehrig’s Disease.” The Bardstown, Kentucky-based distiller releases these special bottles every September, with $10 from each bottle to be donated to the ALS Association’s “Parker’s Promise of Hope Fund.”
“Parker Beam Promise of Hope”
The nation's largest gathering of ALS advocates is going virtual! The 2020 National ALS Vitural Advocacy Conference brought together ALS advocates from across the country to learn about the latest in ALS research, care services and advocacy and engage with Congress on policy priorities that will improve the lives of people with ALS.
Not to be deterred by the COVID-19 pandemic, ALS Association advocates from across the country held more than 350 virtual meetings with members of Congress Tuesday, adapting the Association’s longstanding annual Advocacy Conference to ensure the safety of participants.
Historically, upwards of 600 ALS advocates gather in the nation’s capital for days of face-to-face meetings with their elected representatives in the Congress and the Senate.
“COVID-19 makes our policy priorities all the more relevant,” said Kathleen Sheehan, vice president of public policy at The ALS Association.
“The pandemic exacerbates the financial, emotional and clinical needs of the ALS community and it was imperative to let legislators know that, even if it meant modifying our conference to a new platform.”
Register Here. There is no fee to attend, but registration is required.
ALS advocates lead the fight to defeat ALS on the frontlines.
Join us today to inform your lawmakers about issues that affect people living with ALS and their families.
$1 Dollar Difference fund.
-Dine to Donate
-Hop, Bowk, Swim, and Skate A-Thons
-Golf/Mini Golf Tournament
-5K or Marathon
-Corn Hole Tournament