Ice Bucket Challenge Progress

 



2018 Holidays Graphic



Kroger Community Rewards

Now available in LOUISVILLE and NORTHERN KENTUCKY!

Make sure that you have re-enrolled since April 2017 for Kroger Community Rewards.  It doesn't cost you anything and you earn $$$ for The ALS Association Kentucky Chapter while you shop.  You can login to your Kroger account using THIS LINK and you can find our Chapter by searching "ALS Association Kentucky Chapter" or using our Organization Number:

Northern Kentucky: #83064
Louisville: #69419

This is currently available in the Louisville and Northern Kentucky regional areas and we are working to be included across Kentucky.

Let's go Krogering to help Strike Out ALS!!!




2017 Advocacy Collage

Become an Advocate

Your Voice Counts!

An ALS Association Advocate is a foot soldier in the battle to defeat ALS. An ALS Association Advocate is someone who is passionate about getting involved with government at all levels to draw awareness and resources to the people affected by this disease. An ALS Association Advocate is someone who is willing step outside of their comfort zone to effect real change in the way our government responds to the needs of the ALS community. Even if you aren't a friend relative, supporter or business associate of a legislator, you can open doors through your outreach. As an ALS Association Advocate, you can help change the laws and policies that affect thousands of persons with ALS and their families.



KENTUCKY'S WALK TO DEFEAT ALS!

2019 Registration Is Open

 

We come together to Walk for those who can't and Walk with those we LOVE.
Stay tuned for upcoming events across Kentucky in 2019 as we expand our awareness and support efforts for ALS and those affected by this disease.


Northern Kentucky Walk - May 4, 2019
Florence Freedom Stadium

REGISTRATION IS NOW OPEN!!!
Check out the Northern Kentucky Walk to Defeat ALS Facebook Page HERE for events year round in NKY

We would like to thank our Northern Kentucky Walk Sponsors for their incredible support.


2018 NKY Freedom Logo

Check out all of our local 2019 NKY Walk to Defeat ALS Sponsors HERE 



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Louisville Walk - May 11, 2019
Louisville Slugger Field

REGISTRATION IS NOW OPEN!!!
Check out the Louisville Walk to Defeat ALS Facebook Page HERE for events year round in Louisville

Registration is open and the 2019 Louisville Walk site is up! We are now also open for our 2019 Walk Sponsors and Partnerships, we would love to hear from you to partner in our fight against ALS!


2018 Louisville Bats Big Image

Check out all of our local 2019 Louisville Walk to Defeat ALS Sponsors HERE 

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Western Kentucky Walk - TBD FALL, 2019
CFSB-MSU

Check out the Western Kentucky Walk to Defeat ALS Facebook Page HERE for events year round in Western Kentucky

We would like to thank our Western Kentucky Walk Sponsors for their incredible support.


2018 WKY CFSB Center Logo

Check out all of our local 2018 Western Kentucky Walk to Defeat ALS Sponsors HERE 

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Lexington Walk - TBD FALL, 2019
Rupp Arena

Check out the Lexington Walk to Defeat ALS Facebook Page HERE for events year round in Lexington

We would like to thank our Lexington Kentucky Walk Sponsors for their incredible support.


Rupp Arena

Check out all of our local 2018 Lexington Walk to Defeat ALS Sponsors HERE 

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If you still have donations to turn in please include a note to where the donation should be credited and mail your donation to:

The ALS Association Kentucky Chapter
8640 Haines Drive
Suite F
Florence, KY 41042 

 

Please contact Lena Isaacs by email or call the office at 859-331-1384 if you would
like a Walk information packet, need additional information or have any questions.





 


Make sure that you "like" and stay tuned to our Chapter FACEBOOK PAGE for research updates,
support group reminders, pictures and announcements from our Walks and other events

Facebook

 

If you have any questions about participating in a Walk, registering,holding a fundraiser, using your Walk Participant Center, or Volunteering please contact Lena Isaacs at 800-406-7702.


Kentucky Chapter Care Services

 

Support Group Dates!

Support Group

 

Northern Kentucky Area
2nd Tuesday of the Month-6pm
Hospice Care of St. Elizabeth
483 South Loop Drive; Edgewood, KY

Murray Area
2nd Thursday of the Month-6pm
Murray Calloway County Hospital    
Hospital Board Room
803 Poplar Street; Murray, KY  42071

Lexington Area
Quarterly on the 3rd Tuesday of
Cardinal Hill Rehab Hospital
Center of Learning Wing
2050 Versailles Road; Lexington, KY

Louisville Area
4th Tuesday of the Month-6pm
Central Bank - Community Room
9300 Shelbyville Road; 2nd Floor
Louisville, KY

Please keep in mind that dates, times, and locations can change.  For more information please contact:


Patricia Peak - ext. 1005
Patricia@alsaky.org

800-406-7702

 


Kentucky ALS Clinics and Treatment Centers

 

The ALS Association Kentucky Chapter
8640 Haines Drive, Suite F
Florence KY  41042
800-406-7702

Kentucky ALS Clinic Locations

University of Kentucky ALS Certified Multidisciplinary Clinic

Dr. Edward Kasarskis, Medical Director
Kentucky Neuroscience Institute – 1st floor of Kentucky Clinic
Meets weekly
740 South Limestone Street, J-401
Lexington, Kentucky 40536-0284
Patient Services Coordinator – Brittany Ledford (859) 218-5061
Clinical Research Nurse – Meghann Bruno, RN (859) 218-5064
Fax: (859) 257-5477 or (859) 257-8990
E-mail: meghann.bruno@uky.edu

University of Louisville Physicians Recognized ALS Multidisciplinary Clinic @ Frazier Rehab

Dr. Martin Brown, Medical Director
Frazier Rehab Hospital – 6th Floor
Meets on Friday twice a month
220 Abraham Flexner Way
Louisville, KY 40202
Johanna Harris, RN, BSN, ALS Clinic Coordinator
Email:  fightals@louisville.edu
Phone:  502-588-4829
Fax:  502-589-0805

Norton Neuroscience Institute ALS Clinic

Dr. Mark Bazant, Medical Director
Meets the 3rd Wednesday of the Month
Location: Norton Cancer Institute
676 South Floyd Street, 2nd Floor
Louisville, Kentucky 40202
Phone 502-899-6782
Fax 502-899-6783

Lexington VA – Multidisciplinary ALS Clinic

Dr. Edward Kasarskis, Medical Director
Cooper Division
1101 Veterans Drive
Lexington, KY  40502
Clinic contacts:
Donna Hardiman
Virginia(Ginger) Lewis, APRN
Phone:  859-233-4511 ext 4920

Louisville VA – Multidisciplinary ALS Clinic

Dr. David Haustein, Medical Director
Vickie Dearmond, Nurse Practitioner
Robley Rex VA Medical Center
800 Zorn Ave.
Louisville, KY  40206
Eligibility Office:  502-287-6201
Coordinator:  Shamonda Clark, SW:  502-2877-6204
Rehabilitation Medicine Scheduling:  502-287-5192
Rehabilitation Medicine Fax:  502-287-6964

 


 

KY Equipment Loan Closet

 


Clinical Research Studies involving individuals with ALS at the University of Kentucky


Summary of Clinical Research Studies involving individuals with ALS at the University of Kentucky:

•    FUS Gene Research

•    Sialorrhea (drooling) Study with Radiation Medicine

•    Residential Survey of ALS Patients living in KY, OH, WV, TN, and IN
Patients and families always ask about exposures from the environment as a cause for their ALS.  This is your chance to help answer this question!  Please be part of the "Residential Survey" study.  It is easy.  All you have to do is list the places you have lived from your birth to the present time.  Pencil and paper only, in the privacy of your own home.  You can get the study packet from Patricia Peak, the ALS Association Care Services Manager, or by calling our UK ALS Center at 859-218-5061.  Brittany Ledford will mail you one.  This is a very important study and I hope you can help since the information from each and every person with ALS is important.

•    NP001 Drug Trial – Sponsored by Neuraltus Pharmaceuticals, Inc.
NP001 Study.  The University of Kentucky ALS Center is one of 20 study sites in the US and Canada for this clinical trial of NP001.  We are actively recruiting ALS patients into the study.  Call Meghann Bruno for information at 859-218-5064

•    Be watching for the upcoming Amylx clinical trial.
This will start sometime in the spring of 2017.  The University of Kentucky ALS Center will be one of the clinical trial sites.

Please feel free to call at any time regarding ALS/PLS Clinical Trials!

CONTACTS:

University of Kentucky ALS Center
Kentucky Clinic – Kentucky Neuroscience Institute
740 S. Limestone Street, J-401
Lexington, KY 40536-0284

Edward J. Kasarskis, MD, PhD
Neurologist / Principal Investigator
Office Phone: (859) 218-5061

Brittany Ledford, CNA
Clinic Coordinator
E-mail:  brittany.cassity@uky.edu

Meghann Bruno, RN, BSN
Clinical Research Nurse
Office Phone: (859) 218-5064
Office Fax: (859) 257-5477
E-mail: meghann.bruno@uky.edu

Meha Joshi, BA
Research Assistant
Office Phone: (859) 218-5046
Office Fax: (859) 257-5477
E-mail: majo235@uky.edu

 Phone:  859-218-5061
FAX: 859-257-5477

Click Here for more information on the different studies, you can also contact Dr. Kasarskis' offices at 859-218-5064 and visit the National Institute of Health's clinical trials website at http://clinicaltrials.gov/.

 


Parker's Promise of Hope (Web)

 

Parker's Heritage (2015)

Again Heaven Hill Distilleries plans to donate part of the proceeds from the annual Parker’s Heritage Collection whiskey to fight Amyotrophic Lateral Sclerosis, better known as “Lou Gehrig’s Disease.” The Bardstown, Kentucky-based distiller will release the 2017 edition of the Parker’s Heritage Collection series in September, with $5 from each bottle of the 8-year-old Kentucky Straight Malt Whiskey to be donated to the ALS Association’s “Parker’s Promise of Hope Fund.”

Click on the link below to read more information about the Parker's Heritage Collection...
http://whiskycast.com/heaven-hill-continues-als-battle-with-2015-parkers-heritage-collection/

“Parker Beam Promise of Hope”
www.alsa.org/ParkerBeamPromiseofHope

 


 

ALS National Registry

ALS National Registry

Are you familiar with the National ALS Registry? As part of our continued effort to fight ALS, we have launched a new website!

Visit: http://www.alsa.org/registry.

“LIKE” or “SHARE” to let others know.  The National ALS Registry may be the single largest ALS research project ever created. It is designed to identify ALS cases from throughout the United States. The Registry is collecting critical information about the disease that may improve care for people with ALS and help us learn what causes the disease, how it can be treated and even prevented.

ATSDR is conducting a feasibility study to look into adding a biorepository to the National ALS Registry. A biorepository would let registrants voluntarily give samples, such as blood and saliva during home visits.  These samples could be linked to information already collected by the registry and could help scientists better understand the causes of ALS. Visit http://wwwn.cdc.gov/als/ALSBioRegistry.aspx to learn more and to volunteer to participate in the study.


 

 

 

 

Friends of Pam Scholarship Fund

 

Friends of Pam Scholarship

As a tribute to Pam, who lived with ALS from 2006 until her death in February of 2012, Healin' Wheels LLC has established the Friends of Pam Scholarship Fund to assist dependents and primary caregivers of ALS patients who plan to continue their education in college or vocational school programs. Renewable scholarships are offered each year for study at an accredited institution of the student's choice.

This scholarship program is administered by Scholarship Management Services, a division of Scholarship America. Scholarship Management Services is the nation's largest designer and manager of scholarship and tuition reimbursement programs for corporations, foundations, associations and individuals. Awards are granted without regard to race, color, creed, religion, sexual orientation, age, gender, disability or national origin.

Dependents of ALS patients: Graduating high school seniors, current high school graduates and current undergraduates can apply for a scholarship of up to $5,000: http://sms.scholarshipamerica.org/healinwheels.


Federal Employees, remember The ALS Association Kentucky Chapter in the CFC!CFC

The Combined Federal Campaign allows federal employees to donate to their choice of thousands of local and national charities through a simple payroll deduction.  CFC donors must provide a 5 digit designation code for the charity they wish to support on their pledge form. 

The CFC code for The ALS Association Kentucky Chapter is 19874.  Federal employees can check the CFC brochure to review the list of participating charities. You will find our charity under Community Health Charities of Kentucky in the Local Federation section of the CFC brochure.  If you have any questions about the campaign, please contact Allison Perkins with Community Health Charities at 502-581-0203 or aperkins@healthcharities.org.


$1 Dollar Difference Fundraisers!

Every penny counts. Make an impact in your community in the fight against Lou Gehrig's Disease & start your own
$1 Dollar Difference fund.

-Poker Tournament
-Motorcycle/Bike Ride
-Garage Sale
-School Fundraiser
-Dine to Donate
-Car Show
-Hop, Bowk, Swim, and Skate A-Thons
-Golf/Mini Golf Tournament
-5K or Marathon
-Corn Hole Tournament
-Bake Sale
-Karaoke/Trivia Night


 

Volunteer Opportunities – Need Service Hours???

Lexington Walk Registration Volunteers (2014)

In the Northern Kentucky area and would like to volunteer in our office?

We are also currently recruiting members interested in serving on our local Walk Planning Committees and volunteering on Walk Day.  Please contact Lena Isaacs at 859-331-1384 or via email at Lena@alsaky.org for more details!

 


Thank you to our Kentucky Chapter Year Round Partners!

Parker Haritage (Small)
Norton Neuroscience Institute