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Want to Volunteer?
 There are many volunteer opportunities with The Kentucky ALS Association...
-Walk Day Volunteer -Walk Committee -Fundraiser Event Volunteer -Office Volunteer
Sign Up Today!
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2010 Louisville Walk  Join us on May 8th at Papa John's Corporate Campus as we Walk to Defeat ALS!
Click Here to Register YOU or your TEAM
Contact Jennifer Lepa at 859-331-1384 or via email at Jennifer@alsaky.org if you are interested in...
· Joining the 2010 Louisville Walk Committee ·Being a Walk Day Volunteer · Silent Auction Items
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"Hunting for a Cure" Banquet
When: Saturday, March 20th from 4pm-10pm Dinner will be served at 6:00pm
Where: Camp Crooked Creek Shepherdsville, KY
Silent Auction, Live Auction, Raffles, and Lots of Door Prizes!!!
If you love the outdorrs than this is an event you don't want to miss! Join us for some great HOME COOKIN', tons of hunting and fishing items and a chance to help a worthwhile cause!
Topurchase tickets for this event please contact: Toni Johnson at (502)921-0139 or (502)643-2961 via email at johnson.toni@windstream.net Kenny Ball at (502) 523-8772 or (502) 957-3529 via email at emailme2@insightbb.com
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2010 Louisville Walk to Defeat ALS Corporate Breakfast
 Greg Galiette, of the Louisville Bats, cordially invites you to the 2010 LouisvilleCorporate Breakfast February 25th at 8:00am
Please contact Jennifer Lepa (Jennifer@alsaky.org) at 859-331-1384 if you are interested in representing your company at the breakfast or you would like for us to send an invitation to your company.
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PALS Helping PALS
 Items or equipment for sale to benifit people and families touched by ALS.
Toadd a listing please contact Jennifer Lepa (Jennifer@alsaky.org) at 1-800-406-7702. |
Cooking for a Cure!
 "I have compiled this cookbook using a computer, my eyes, and my family.
We have written this cookbook with the help of people from all over the world. Please help to support research and equipment needs by purchasing a cookbook on CD."
-Bryan Osburn
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Thank You Alpha Delta Kappa Sorority! The Alpha Delta Kappa Sorority of Louisville presented Patricia Peak, from the Kentucky ALS Association, with a check from money raised by their October fundraiser. |
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| Lebanon Junction Day |
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| Congressman Brett Guthrie representing the 2nd District in KY visited with Mitch, Kay, Shelby and Tanner Ensor. Congressman Guthrie met Kay and Shelby Ensor in May 2009 at ALS Advocacy Day in Washington, DC. |
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| 1000 Miles for Mike |
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| Brian Hronek and Joe Jungkunz took their first step of 1000 Miles for Mike on Saturday, September 5th from Newport on the Levee in Northern Kentucky. They will trek 1000 miles accross Kentucky, Indiana, and Ohio as they raise money and awareness for Lou Gehrig's Disease. They will take the last steps of their journey to deliver the game ball to the mount at the Cincinnati Red's Stadium on October 1st. To read the rest of Brian and Joe's story or to contribute to their walk efforts visit http://web.alsa.org/1000MilesforMike. |
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2009 Louisville Walk to Defeat ALS
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Thank You to all of our outstanding Walkers, Volunteers, and Sponsors who came out and Walked to Defeat ALS at the 2009 Louisville Walk! |
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Advocacy Day in Washington DC
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2009 Annual ALS Conference
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ALS Association Kentucky Chapter Staff, Board of Directors, Patient Services, and Volunteers attended this years 2009 Annual ALS Conference in Newport, CA.
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Free Webinar/Audio Conference on New AAN Guidelines for Treating ALS
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The American Academy of Neurology and The ALS Association are offering a free audio conference call at 5 p.m. (Eastern Time) on February 11, 2010 for people with ALS and their caregivers regarding the Academy’s new guidelines on the most effective treatments for ALS.
The audio conference call will help emphasize that a lot can be done to make life easier and longer for people with ALS. Important areas of care needing more research will also be highlighted.
The presenters include Robert G. Miller, M.D., neurologist and lead author of the Academy’s ALS guidelines, coauthors Carlayne E. Jackson, M.D., Edward J. Kasarskis, M.D., Ph.D., and Dallas A. Forshew, R.N.
A brief question-and-answer period will be available to patients and caregivers at the end of the call as time permits.
The American Academy of Neurology, an association of more than 22,000 neurologists and neuroscience professionals, is dedicated to promoting the highest quality patient-centered neurologic care. A neurologist is a doctor with specialized training in diagnosing, treating and managing disorders of the brain and nervous system such as, ALS, Parkinson’s disease, stroke, Alzheimer’s disease, dementia, West Nile virus and ataxia.
For more information about the American Academy of Neurology and its guidelines for treating ALS, click here.
To join the audio conference call with webinar capability, log on to https://alsa-events.webex.com/alsa-events/onstage/g.php?t=a&d=667887783. This is available to the first 1,000 registrants. If the webinar event is full, join the audio teleconference at: Toll Free #: (877) 669-3239 or Toll # (408) 600-3600. The participant pass code is 667 887 783, then press #, #.
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Kentucky Hospital Clinic Approved As the 23rd Certified Center of The ALS Association
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In only two years since it opened its doors to meet a full range of needs of people with ALS, the ALS clinic at the University of Kentucky and Cardinal Hill Rehabilitation Hospital has become the 23rd ALSA Center SM certified by The ALS Association (ALSA), the nation’s preeminent leader in the fight against ALS (amyotrophic lateral sclerosis), a progressive neurodegenerative disease.
The ALSA Center program sets the national standard for clinical care for people living with ALS, commonly referred to as Lou Gehrig’s disease, and their family members.
Under the direction of Edward Kasarskis, M.D., Ph.D., the University of Kentucky ALS Center is located at the Cardinal Hill Rehabilitation Hospital in Lexington, Ky., where a multidisciplinary team of dedicated professionals provide care to ALS patients and their families in a supportive, family-oriented atmosphere.
“This collaborative environment provides patients with a comprehensive evaluation and treatment plan designed to maximize function and the quality of life,” said Connie Houston, president of the ALSA Kentucky Chapter, which agreed to support the clinic’s desire to become certified as a Center of Excellence.
“This team approach provides the highest quality of care for people with ALS and their families,” added Houston, whose chapter sends a member of its Patient Services team to participate at the Center on clinic days and provides compensation to the Center dietician.
Approximately 30,000 Americans, at any given time, are afflicted by ALS. The life expectancy for those living with the disease is approximately two to five years from the time of diagnosis.
The ALS Association is the nation’s only not for profit voluntary health organization dedicated solely to the fight against ALS.
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