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The ALS Association Kentucky Chapter

 

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Advances in ALS and FTD Genetics Workshop: Report from the Society for Neuroscience Meeting
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Association-Funded Scientists Identify Major Steps to Accelerate Therapy Development
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Helping the Motor Neurons in the Brain Also Helps Those in the Spinal Cord
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Catch the Spirit of the Giving Season 

ALS StaffAfter spending Thanksgiving reflecting on our blessings, many of us choose to express our gratitude by giving back to others. As the giving season moves into full swing, join us in the spirit by supporting research, care, and hope for people living with ALS.

#GivingTuesday

On Tuesday, December 2, 2014, The ALS Association Kentucky Chapter will take part in #GivingTuesday, an online movement designed to celebrate generosity and highlight the importance of helping those in need during the holidays. Described by its organizers as “a global day dedicated to giving back,” #GivingTuesday takes place each year on the Tuesday after Thanksgiving.

For this year’s #GivingTuesday celebration, The ALS Association will be one of 10 organizations featured on CrowdRise’s peer-to-peer fundraising website.  CrowdRise has introduced a special element into this year’s #GivingTuesday campaign - a Giving Tower developed to demonstrate the impact of charitable giving around the world on the year’s most philanthropic day! The Giving Tower is a “virtual tower” in which each “brick” represents a donation to a cause.  With the donor’s picture and cause shown on each brick, the growing tower will grow in real time throughout the day.

You can support The ALS Association Kentucky Chapter and those living with ALS by donating to the Giving Tower online or via an app available for download from Google Play and iTunes.  When you download the Giving Tower app, you will be able to access the tower in augmented reality (think: hologram) by pointing your mobile device at a dollar bill.

“GivingTuesday is a great reminder of what the season is really about: not shopping or sales, but generosity and giving,” said Mari Bacon, the Executive Director of The ALS Association Kentucky Chapter.  “Every donation to the Giving Tower will continue to fund Care Services in the state of Kentucky as well as cutting edge ALS research.”

“Our Work Is Not Done”

The Ice Bucket Challenge, which took the country by storm this past summer, increased awareness of ALS and raised more than $115 million in support of The ALS Association. Whether they braved the ice or not, millions of people from around the globe gave generously in support of our vision to create a world without ALS.

That outpouring of support has enabled us to triple our spending on research, including an initial expenditure of $21.7 million approved in October to support six initiatives designed to expedite the search for treatments and a cure for ALS. 

“On behalf of The ALS Association, I thank everyone who donated this year. Your support is essential to funding research, care service programs and advocacy with the power to change the lives of people living with ALS,” said Kentucky Board President, Shawn Mullennex. “The year may be drawing to a close, but our work is not. Our work is not done until we find a cure for this disease.”

Thank you for your continued support of our mission to one day live in a world without ALS.  Be an ALS Angel today and make your tax-deductible donation to The ALS Association Kentucky Chapter this holiday season.  Your donation will fund the most collaborative, cutting-edge scientific research in the world; care for people living with the disease across the country; and advocacy programs focused on achieving federal and state support for ALS research and care.

Happy Holidays from everyone at The ALS Association Kentucky Chapter!

Homepage-KY-Angels.jpgWe are each of us angels with only one wing,
and we can only fly by embracing one another.

~Luciano de Crescenzo

 The Kentucky ALS Association is seeking ‘Angels’ to help support
Care Services and Research across the Commonwealth.  With every donation
made, an ‘Angel’ will be displayed on our ‘Angel Tree’ or our office windows in
honor of the Donor or the name of a Loved One.

Honor the ANGEL in your life and be an ANGEL in ours!

CLICK HERE to DONATE

Together we WILL Strike out ALS!

Thank you to everyone who joined us as we Walk to Defeat ALS! 


Murray Walk (2014) Murray Walk (2014) Lexington Walk 2014

Louisville Walk 2014 Louisville Walk (2014) NKY Walk (2014)

If you have any questions about participating in a Walk, registering,
holding a fundraiser, using your Walk Participant Center, or Volunteering

please contact Jennifer Houston (Jennifer@alsaky.org) at 800-406-7702.


Parker Beam

Heaven Hill Distilleries, Inc. will be working with the ALS Association Kentucky Chapter to promote awareness and fundraising for efforts to battle the disease, in the early stages of which legendary 6th Generation Master Distiller Parker Beam has been recently diagnosed.

The ALS Association has established a special fund, known as the Parker Beam's Promise of Hope Fund, into which $20 for each bottle of next fall’s Parker’s Heritage Collection sold will be donated. Although the details and quantities of the next Parker’s Parker Haritage (Small)Heritage Collection release will not be made public for some time, Heaven Hill expects to produce sufficient quantities to aid in research to combat a disease which affects over 30,000 Americans at any given time.

READ FULL ARTICLE HERE

Twitter

You can follow The ALS Association Kentucky Chapter and National ALS Public Policy on Twitter at the links below:

PALS Helping PALS

If you are looking for medical equipment or items for sale, look here!  The items listed below are for sale by individuals who want the equipment to benifit someone with ALS.  Browse the list below, if you see an item of interest please feel free to contact the person by the information provided.

 

Friends of Pam ScholarshipThe Friends of Pam Scholarship 

Dependents of ALS patients: The Friends of Pam Scholarship application is now available! Graduating high school seniors, current high school graduates and current undergraduates can apply to receive a scholarship of up to $5,000. CLICK HERE for information or visit The Friends of Pam Scholarship webpage at http://sms.scholarshipamerica.org/healinwheels to learn more! Healin’ Wheels LLC started The Friends of Pam Scholarship in honor of Pam Callahan, who has been living with ALS since 2006.

Start collecting for your team TODAY!

Contact Jennifer Houston (Jennifer@alsaky.org) at 859-331-1384 for ideas or to take advantage of our current fundraising items:

Coin Collection Canisters or Banks
"Fighting ALS" Car Magnets
"Fighting Lou Gehrig's Disease" Wristbands
"Dressing Down for ALS" Day

piggy bank

Want to be an ALS Volunteer?

 Volunteers

CLICK HERE TO SIGN UP


 
 
 

 


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OUR MISSION: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.


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The ALS Association Kentucky Chapter
2815 Amsterdam Road
Villa Hills, KY 41017
P: (800) 406-7702

 
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