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The ALS Association Kentucky Chapter


Latest News

ATSDR Reports First Data Set from the National ALS Registry
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Safenowitz Fellows Present Research, Network at New York Meeting
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Major League Baseball Raises Awareness, Funds in the Fight Against Lou Gehrig's Disease
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ALS National Registry

New Surveys Added to the National ALS Registry
The Public Policy Department is excited to announce that the Agency for Toxic Substances and Disease Registry (ATSDR) has added new online risk factor surveys to the National ALS Registry.

These brief, yet extremely important surveys will make the Registry even more useful to researchers who are studying the disease.  The three new surveys gather information about residential history, occupational history and home pesticide use.

Help fight ALS and share this news with people with ALS, so they can complete the new surveys today at!

If you have any questions about the risk factor surveys or National ALS Registry please contact the
Public Policy Department at

Walk to Defeat ALS in a town near you!

Every walker that raises $75 or more will receive this shirt at registration on Walk Day.

 Walk Shirt (2014)

2014 Louisville Walk - Papa John's Corporate Campus
May 10th 2014

2014 NKY Walk to Defeat ALS - Turfway Park
May 17th 2014


2014 Murray Walk to Defeat ALS - MSU CFSB
September 20th 2014

 2014 Lexington Walk to Defeat ALS - Rupp Arena
September 27th 2014

Together we WILL strike out ALS!

If you have any questions about participating in a Walk, registering,
holding a fundraiser, using your Walk Participant Center, or Volunteering

please contact Jennifer Houston ( at 800-406-7702.

Parker Beam

Heaven Hill Distilleries, Inc. will be working with the ALS Association Kentucky Chapter to promote awareness and fundraising for efforts to battle the disease, in the early stages of which legendary 6th Generation Master Distiller Parker Beam has been recently diagnosed.

The ALS Association has established a special fund, known as the Parker Beam's Promise of Hope Fund, into which $20 for each bottle of next fall’s Parker’s Heritage Collection sold will be donated. Although the details and quantities of the next Parker’s Parker Haritage (Small)Heritage Collection release will not be made public for some time, Heaven Hill expects to produce sufficient quantities to aid in research to combat a disease which affects over 30,000 Americans at any given time.



You can follow The ALS Association Kentucky Chapter and National ALS Public Policy on Twitter at the links below:


If you are looking for medical equipment or items for sale, look here!  The items listed below are for sale by individuals who want the equipment to benifit someone with ALS.  Browse the list below, if you see an item of interest please feel free to contact the person by the information provided.


Friends of Pam ScholarshipThe Friends of Pam Scholarship 

Dependents of ALS patients: The Friends of Pam Scholarship application is now available! Graduating high school seniors, current high school graduates and current undergraduates can apply to receive a scholarship of up to $5,000. CLICK HERE for information or visit The Friends of Pam Scholarship webpage at to learn more! Healin’ Wheels LLC started The Friends of Pam Scholarship in honor of Pam Callahan, who has been living with ALS since 2006.

Is your Walk held in the Fall?

Start collecting for your team TODAY!

Contact Jennifer Houston ( at 859-331-1384 for ideas or to take advantage of our current fundraising items:

Coin Collection Canisters or Banks
"Fighting ALS" Car Magnets
"Fighting Lou Gehrig's Disease" Wristbands
"Dressing Down for ALS" Day

piggy bank

Want to be an ALS Volunteer?

2009 Louisville Food and Beverage Volunteers




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OUR MISSION: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

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The ALS Association Kentucky Chapter
2815 Amsterdam Road
Villa Hills, KY 41017
P: (800) 406-7702

All content and works posted on this website are owned and copyrighted by The ALS Association. © 2013
Lou Gehrig® used with permission of the Rip Van Winkle Foundation /