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2009 Lexington Walk - Volunteers (Joyce and Sarah)
There are many volunteer opportunities
with The Kentucky ALS Association...

-Walk Day Volunteer
-Walk Committee
-Fundraiser Event Volunteer
-Office Volunteer

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2009 Lexington Walk to Defeat ALS
2009 Lexington Walk - Journey for Joe

Thank you to all of you who walked and supported
this year's 2009 Lexington Walk.

If you still have donations to turn in you can
mail them the to...
                  
The Kentucky ALS Association
2807 Amsterdam Road
Villa Hills, KY 41017
 PALS Helping PALS

Allora Text-to-Speech Device 2
Items or equipment for sale to benifit
people and families touched by ALS.

Toadd a listing please contact Jennifer Lepa
(
Jennifer@alsaky.org) at 1-800-406-7702.

Cooking for a Cure!
Apple Pie
"I have compiled this cookbook using a computer,
my eyes, and my family.

We have written this cookbook with the help of people
from all over the world.  Please help to support research and equipment
needs by purchasing a cookbook on CD."

-Bryan Osburn

Alpha Delta Kappa Sorority Fundraiser (Oct-2009) #2
Thank You Alpha Delta Kappa Sorority!
The Alpha Delta Kappa Sorority of Louisville presented Patricia Peak, from the Kentucky ALS Association, with a check from money raised by their October fundraiser.

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Lebanon Junction Day

Lebanon Junction Day (100309)

Congressman Brett Guthrie representing the 2nd District in KY visited with Mitch, Kay, Shelby and Tanner Ensor.  Congressman Guthrie met Kay and Shelby Ensor in May 2009 at ALS Advocacy Day in Washington, DC.

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1000 Miles for Mike

1000 Miles for Mike (100109)

Brian Hronek and Joe Jungkunz took their first step of 1000 Miles for Mike on Saturday, September 5th from Newport on the Levee in Northern Kentucky.  They will trek 1000 miles accross Kentucky, Indiana, and Ohio as they raise money and awareness for Lou Gehrig's Disease.  They will take the last steps of their journey to deliver the game ball to the mount at the Cincinnati Red's Stadium on October 1st.  To read the rest of Brian and Joe's story or to contribute to their walk efforts visit http://web.alsa.org/1000MilesforMike.

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2009 Louisville Walk to Defeat ALS
2009 Louisville Walk - Nick and Jim Butcher 2009 Louisville Walk
Thank You to all of our outstanding Walkers, Volunteers,
and Sponsors who came out and
Walked to Defeat ALS at the 2009 Louisville Walk!
 

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Advocacy Day in Washington DC
2009 Advocacy Day in Washington DC 2009 Advocacy Day in Washington DC

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                                 2009 Annual ALS Conference             
2009 Annual Conference - Group Pic 1 2009 National Conference - Pic 9

ALS Association Kentucky Chapter Staff, Board of Directors,
Patient Services,
and Volunteers attended this
years 2009 Annual ALS Conference in Newport, CA.

 

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The ALS Association Supports our Veterans

Veterans and Caregivers 
In honor of Veteran's Day, The ALS Association has launched a letter-to-the-editor campaign to support our nation's veterans and raise awareness of the connection between military service and ALS, a disease that strikes veterans at approximately twice the rate as the general public. 

The Association has prepared a sample letter that individuals can easily send to local media outlets leading up to Veterans Day.  In addition to raising awareness, this campaign will help generate support for veterans, their families and caregivers and advance the search for a treatment and cure for Lou Gehrig's Disease. 

The letter is particularly timely as November also is National Family Caregivers Month.  The letter can help educate veterans with ALS and their family caregivers across the country about the availability of vital benefits from the Veterans Administration.  The ALS Association advocated for these benefits, which include monthly disability compensation, health care and aide and attendant benefits so urgently needed by veterans with ALS and their families to help them meet the day to day challenges of living with this disease. 

 

 

Read full story

Kentucky Hospital Clinic Approved As the 23rd Certified Center of The ALS Association

In only two years since it opened its doors to meet a full range of needs of people with ALS, the ALS clinic at the University of Kentucky and Cardinal Hill Rehabilitation Hospital has become the 23rd ALSA Center SM certified by The ALS Association (ALSA), the nation’s preeminent leader in the fight against ALS (amyotrophic lateral sclerosis), a progressive neurodegenerative disease.  

The ALSA Center program sets the national standard for clinical care for people living with ALS, commonly referred to as Lou Gehrig’s disease, and their family members.

Under the direction of Edward Kasarskis, M.D., Ph.D., the University of Kentucky ALS Center is located at the Cardinal Hill Rehabilitation Hospital in Lexington, Ky., where a multidisciplinary team of dedicated professionals provide care to ALS patients and their families in a supportive, family-oriented atmosphere.  

“This collaborative environment provides patients with a comprehensive evaluation and treatment plan designed to maximize function and the quality of life,” said Connie Houston, president of the ALSA Kentucky Chapter, which agreed to support the clinic’s desire to become certified as a Center of Excellence.  

“This team approach provides the highest quality of care for people with ALS and their families,” added Houston, whose chapter sends a member of its Patient Services team to participate at the Center on clinic days and provides compensation to the Center dietician.  

Approximately 30,000 Americans, at any given time, are afflicted by ALS. The life expectancy for those living with the disease is approximately two to five years from the time of diagnosis.

The ALS Association is the nation’s only not for profit voluntary health organization dedicated solely to the fight against ALS.

 

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