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Want to Volunteer?
2009 Louisville Food and Beverage Volunteers
There are many volunteer opportunities
with The Kentucky ALS Association...

-Walk Day Volunteer
-Walk Committee
-Fundraiser Event Volunteer
-Office Volunteer

Sign Up Today!

2010 Louisville Walk
 2009 Louisville Walk - Nick and Jim Butcher
Join us on May 8th at Papa John's Corporate Campus
as we Walk to Defeat ALS!

Click Here to Register YOU or your TEAM

Contact Jennifer Lepa at 859-331-1384 or via email at
Jennifer@alsaky.org if you are interested in...

· Joining the 2010 Louisville Walk Committee
·Being a Walk Day Volunteer
· Silent Auction Items

"Hunting for a Cure" Banquet

When:
Saturday, March 20th from 4pm-10pm
Dinner will be served at 6:00pm

Where:
 Camp Crooked Creek
Shepherdsville, KY

Silent Auction, Live Auction, Raffles, and Lots of Door Prizes!!!

If you love the outdorrs than this is an event you don't want to miss!
Join us for some great HOME COOKIN', tons of hunting and fishing
items and a chance to help a worthwhile cause!

Topurchase tickets for this event please contact:
Toni Johnson
at (502)921-0139 or (502)643-2961 via email at
johnson.toni@windstream.net
Kenny Ball at (502) 523-8772 or (502) 957-3529 via email at
emailme2@insightbb.com

2010 Louisville Walk to Defeat ALS
Corporate Breakfast
Greg Galiette Louisville Bats (small)
Greg Galiette, of the Louisville Bats, cordially invites you to the
2010 LouisvilleCorporate Breakfast
February 25th
at 8:00am

Please contact Jennifer Lepa (Jennifer@alsaky.org) at
859-331-1384 if you are interested in representing
your company at the breakfast or you would like for
us to send an invitation to your company.

 PALS Helping PALS

Allora Text-to-Speech Device 2
Items or equipment for sale to benifit
people and families touched by ALS.

Toadd a listing please contact Jennifer Lepa
(
Jennifer@alsaky.org) at 1-800-406-7702.

Cooking for a Cure!
Apple Pie
"I have compiled this cookbook using a computer,
my eyes, and my family.

We have written this cookbook with the help of people
from all over the world.  Please help to support research and equipment
needs by purchasing a cookbook on CD."

-Bryan Osburn

Alpha Delta Kappa Sorority Fundraiser (Oct-2009) #2
Thank You Alpha Delta Kappa Sorority!
The Alpha Delta Kappa Sorority of Louisville presented Patricia Peak, from the Kentucky ALS Association, with a check from money raised by their October fundraiser.

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Lebanon Junction Day

Lebanon Junction Day (100309)

Congressman Brett Guthrie representing the 2nd District in KY visited with Mitch, Kay, Shelby and Tanner Ensor.  Congressman Guthrie met Kay and Shelby Ensor in May 2009 at ALS Advocacy Day in Washington, DC.

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1000 Miles for Mike

1000 Miles for Mike (100109)

Brian Hronek and Joe Jungkunz took their first step of 1000 Miles for Mike on Saturday, September 5th from Newport on the Levee in Northern Kentucky.  They will trek 1000 miles accross Kentucky, Indiana, and Ohio as they raise money and awareness for Lou Gehrig's Disease.  They will take the last steps of their journey to deliver the game ball to the mount at the Cincinnati Red's Stadium on October 1st.  To read the rest of Brian and Joe's story or to contribute to their walk efforts visit http://web.alsa.org/1000MilesforMike.

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2009 Louisville Walk to Defeat ALS
2009 Louisville Walk - Nick and Jim Butcher 2009 Louisville Walk
Thank You to all of our outstanding Walkers, Volunteers,
and Sponsors who came out and
Walked to Defeat ALS at the 2009 Louisville Walk!
 

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Advocacy Day in Washington DC
2009 Advocacy Day in Washington DC 2009 Advocacy Day in Washington DC

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                                 2009 Annual ALS Conference             
2009 Annual Conference - Group Pic 1 2009 National Conference - Pic 9

ALS Association Kentucky Chapter Staff, Board of Directors,
Patient Services,
and Volunteers attended this
years 2009 Annual ALS Conference in Newport, CA.

 

Spotlight Bar 9_07 

Free Webinar/Audio Conference on
New AAN Guidelines for Treating ALS

The American Academy of Neurology and The ALS Association are offering a free audio conference call at 5 p.m. (Eastern Time) on February 11, 2010 for people with ALS and their caregivers regarding the Academy’s new guidelines on the most effective treatments for ALS. 

The audio conference call will help emphasize that a lot can be done to make life easier and longer for people with ALS. Important areas of care needing more research will also be highlighted.

The presenters include Robert G. Miller, M.D., neurologist and lead author of the Academy’s ALS guidelines, coauthors Carlayne E. Jackson, M.D., Edward J. Kasarskis, M.D., Ph.D., and Dallas A. Forshew, R.N.

A brief question-and-answer period will be available to patients and caregivers at the end of the call as time permits.

The American Academy of Neurology, an association of more than 22,000 neurologists and neuroscience professionals, is dedicated to promoting the highest quality patient-centered neurologic care. A neurologist is a doctor with specialized training in diagnosing, treating and managing disorders of the brain and nervous system such as, ALS, Parkinson’s disease, stroke, Alzheimer’s disease, dementia, West Nile virus and ataxia.

For more information about the American Academy of Neurology and its guidelines for treating ALS, click here.

To join the audio conference call with webinar capability, log on to https://alsa-events.webex.com/alsa-events/onstage/g.php?t=a&d=667887783. This is available to the first 1,000 registrants.  If the webinar event is full, join the audio teleconference at: Toll Free #: (877) 669-3239 or Toll # (408) 600-3600.  The participant pass code is 667 887 783, then press #, #.

 

 

Kentucky Hospital Clinic Approved As the 23rd Certified Center of The ALS Association

In only two years since it opened its doors to meet a full range of needs of people with ALS, the ALS clinic at the University of Kentucky and Cardinal Hill Rehabilitation Hospital has become the 23rd ALSA Center SM certified by The ALS Association (ALSA), the nation’s preeminent leader in the fight against ALS (amyotrophic lateral sclerosis), a progressive neurodegenerative disease.  

The ALSA Center program sets the national standard for clinical care for people living with ALS, commonly referred to as Lou Gehrig’s disease, and their family members.

Under the direction of Edward Kasarskis, M.D., Ph.D., the University of Kentucky ALS Center is located at the Cardinal Hill Rehabilitation Hospital in Lexington, Ky., where a multidisciplinary team of dedicated professionals provide care to ALS patients and their families in a supportive, family-oriented atmosphere.  

“This collaborative environment provides patients with a comprehensive evaluation and treatment plan designed to maximize function and the quality of life,” said Connie Houston, president of the ALSA Kentucky Chapter, which agreed to support the clinic’s desire to become certified as a Center of Excellence.  

“This team approach provides the highest quality of care for people with ALS and their families,” added Houston, whose chapter sends a member of its Patient Services team to participate at the Center on clinic days and provides compensation to the Center dietician.  

Approximately 30,000 Americans, at any given time, are afflicted by ALS. The life expectancy for those living with the disease is approximately two to five years from the time of diagnosis.

The ALS Association is the nation’s only not for profit voluntary health organization dedicated solely to the fight against ALS.

 

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